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Palliative Care

Journal Article
Patient-Reported Quality Measures for Palliative Care: The Time Is Now
A recent CMS analysis revealed a lack of patient-reported measures in palliative care, particularly in symptom management and communication. We used a patient-centered approach to develop and test two measures for patients receiving palliative care.
May 4, 2023
Journal Article
Does Integration of Palliative Care and Infection Management Reduce Hospital Transfers Among Nursing Home Residents?
We evaluated integration of palliative care and infection management (i.e. merging the goals of palliative care and infection management at end of life) in nursing homes and its association with hospital transfers for residents with advanced illness.
Apr 11, 2023
Blog
A Look Back at the War in Afghanistan, National Secuirty Risks, Hospice Care: RAND Weekly Recap
This weekly recap focuses on why the United States “stayed the unfavorable course” in Afghanistan, the Ohio train derailment, state data on gun deaths, and more.
Mar 3, 2023
News Release
Care Experiences Are Worse in For-Profit Hospices Than in Not-for-Profit Hospices
Family caregivers of patients treated by more than 3,100 U.S. hospices reported worse care experiences on average from for-profit hospices across all of the domains assessed, including help for pain and getting timely care.
Feb 27, 2023
Journal Article
Experiences with Telehealth for Outpatient Palliative Care: Findings from a Mixed-Methods Study of Patients and Providers Across the United States
The purpose of this mixed-methods study was to examine and compare telehealth experiences among outpatient palliative care programs and their patients in the United States.
Oct 25, 2022
Journal Article
"Palliative Care Is the Only Medical Field That I Feel Like I'm Treated As a Person, Not As a Black Person": A Mixed-Methods Study of Minoritized Patient Experiences with Palliative Care
The goal of this mixed-methods study was to examine differences in patient experiences by race/ethnicity in palliative care and to qualitatively explore minoritized patient experiences with care for a serious illness.
Oct 24, 2022
Journal Article
Incorporating the Patient and Caregiver Voice in Palliative Care Quality Measure Development
As part of a national effort to develop palliative care quality metrics for use in accountability programs, we sought to develop survey items assessing patients' experiences of outpatient palliative care, incorporating the patient's voice.
Oct 24, 2022
Commentary
Tele-Palliative Care Among Underserved Patients: Considerations for Future Research to Ensure Equity for All Patients
Underserved patients have been historically marginalized in health care and may experience extensive barriers to palliative care. Telehealth may be a particularly promising mode of palliative care by engaging patients across long distances and facilitating access to existing palliative care resources.
Aug 31, 2022
Journal Article
Evaluation of a Home-Based, Nurse Practitioner–led Advanced Illness Care Program
Evaluation of a nurse-led, home-based serious illness care program (Advanced Illness Care) at UPMC, a health system in Pittsburgh, PA.
Jun 1, 2022
Journal Article
Examining the Course of Transitions from Hospital to Home-Based Palliative Care: A Mixed Methods Study
Mixed methods study of transitions from hospital to home for palliative care/hospice.
Jun 1, 2022
Journal Article
Clinicians' Perceptions of Collaborative Palliative Care Delivery in Chronic Kidney Disease
In interviews with clinicians, they expressed barriers to delivering chronic kidney disease care. To address barriers, clinicians outlined intervention points, such as building models, and structural triggers to identify patients who may be appropriate for palliative care.
Jun 1, 2022
Journal Article
Use of Theoretical Frameworks in the Development and Testing of Palliative Care Interventions
To document the prevalence and application of theoretical frameworks in developing and testing palliative care interventions, we conducted a secondary analysis of previously published systematic reviews of palliative care randomized clinical trials.
Jun 1, 2022
Journal Article
Expert Panel Consensus on Management of Advanced Cancer-Related Pain in Individuals With Opioid Use Disorder
We engaged experts using an online modified Delphi approach to develop consensus on the appropriateness of strategies for managing cancer pain in individuals with co-occurring advanced cancer and opioid use disorder.
Jan 4, 2022
Tool
Serious Illness Survey for Home-Based Programs
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.
Nov 2, 2021
Tool
Serious Illness Survey for Home-Based Programs: Spanish-Language Version
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes. This is the Spanish version of the survey tool.
Nov 2, 2021
Journal Article
Consensus-based Approach to Managing Opioids, Including Opioid Misuse and Opioid Use Disorder, in Patients with Serious Illness: Protocol for a Modified Delphi Process
Using a modified Delphi approach, we created seven patient cases that capture important management challenges in individuals with serious illness prescribed opioid therapy.
Sep 22, 2021
Research Brief
New Patient-Centered Quality Measures for Office-Based Palliative Care
Office-based palliative care use has expanded dramatically in the past 20 years. Palliative care programs will soon be able to measure their patients' experience of care and use those data to assess the quality of care and launch improvement efforts.
Sep 13, 2021
Report
MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Receiving Desired Help for Pain
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care received the help they wanted for their pain.
Sep 3, 2021
Report
MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Feeling Heard and Understood
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care felt heard and understood by their palliative care provider and team.
Sep 3, 2021
Journal Article
Association Between Receipt of Emotional Support and Caregivers' Overall Hospice Rating
"Too much emotional support" is not always viewed negatively in consumer ratings of hospice care.
Apr 21, 2021

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Researcher Spotlight

Julia Bandini

Associate Behavioral and Social Scientist

Julia Bandini is an associate behavioral and social scientist at the RAND Corporation and a professor of policy analysis at the Pardee RAND Graduate School. Her research centers around care for vulnerable and seriously-ill individuals including end-of-life care, palliative and hospice care, and…
Debra Saliba

Physician Policy Researcher

Debra Saliba (she/her), a physician policy researcher at RAND, is also a professor of medicine and the Anna & Harry Borun Endowed Chair in Geriatrics at UCLA. At the Los Angeles VA she is associate director for education in the HSR&D Center of Innovation. As a practicing geriatrician and health…

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