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Patient-Centered Care

Report
Birth-Centered Outcomes Research Engagement (B-CORE) in Medi-Cal: Community-Generated Recommendations to Decrease Maternal Mortality and Severe Maternal Morbidity
The B-CORE project, described in this report, applied the deliberative democracy method to engage affected community members in problem-solving focused on maternal health inequities in California.
May 31, 2023
Journal Article
Treatment Goals for Rheumatoid Arthritis: Patient Engagement and Goal Collection
We worked with a steering committee and surveyed patients with rheumatoid arthritis to test a new method for engaging patients in healthcare valuation using patient goals.
May 4, 2023
Journal Article
Patient-Reported Quality Measures for Palliative Care: The Time Is Now
A recent CMS analysis revealed a lack of patient-reported measures in palliative care, particularly in symptom management and communication. We used a patient-centered approach to develop and test two measures for patients receiving palliative care.
May 4, 2023
Journal Article
Access to After-Hours Primary Care: A Key Determinant of Children's Medical Home Status
Accessibility, especially the ability to access health care after regular office hours, appears to be the major predictor of having a medical home among Latino children.
Jan 24, 2023
Journal Article
Reasons Primary Care Practices Chose Patient Experience Surveys During Patient-Centered Medical Home Transformation
In 2008–2017, 15–18% of U.S. primary care practices sought or maintained patient-centered medical home recognition. We interviewed a sample of 105 of these practices to determine why patient experience surveys were chosen.
Dec 7, 2022
Journal Article
Practices and Changes Associated With Patient-Centered Medical Home Transformation
Evidence shows that leaders who implement the patient-centered medical home care model encounter challenges in driving change. Understanding which changes and quality improvement practices further implementation is essential.
Oct 27, 2022
Journal Article
Using CAHPS Patient Experience Data for Patient-Centered Medical Home Transformation
We interviewed 105 practice leaders from 294 sampled practices and used content analysis to identify themes about uses of patient experience data for practice improvement during PCMH transformation.
Oct 27, 2022
Journal Article
Systematic Review of Rural and Urban Differences in Care Provided by Home Health Agencies in the United States
We conducted a systematic search for English-language peer-reviewed articles after 2010 on differences in urban and rural care provided by U.S. HHAs. We screened 876 studies and conducted full-text abstraction and NOS quality review on 36 articles.
Oct 6, 2022
Journal Article
Predicting Race And Ethnicity To Ensure Equitable Algorithms For Health Care Decision Making
We describe two applications in which imputation of race and ethnicity can help mitigate potential algorithmic biases: equitable disease screening algorithms using machine learning and equitable pay-for-performance incentives.
Aug 23, 2022
Commentary
The False Choice Between China and Russia
Some China hawks have argued that any U.S. response to Russia would detract from America's ability to deter China. But it's a mistake to think of China and Russia as independent problems.
Feb 21, 2022
Journal Article
Reliable and Valid Survey-Based Measures to Assess Quality of Care in Home-Based Serious Illness Programs
Our analyses provide evidence of the feasibility, reliability, and validity of proposed survey-based measures to assess the quality of home-based serious illness care from the perspective of patients and their families.
Jan 25, 2022
Essay
Advances in Care for Veterans with Traumatic Brain Injuries or PTSD
A new standard of care proposed by RAND researchers aims to redefine high-quality care for veterans with a traumatic brain injury or posttraumatic stress disorder. But it also could serve as a template for making health care more effective, more consistent, and more responsive for more patients.
Nov 8, 2021
Tool
Serious Illness Survey for Home-Based Programs
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.
Nov 2, 2021
Tool
Serious Illness Survey for Home-Based Programs: Spanish-Language Version
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes. This is the Spanish version of the survey tool.
Nov 2, 2021
Journal Article
Perceived Impacts of a Medicaid Rebalancing Initiative to Increase Home- and Community-Based Services
Stakeholders reported that BIP participation had a range of impacts on the HCBS ecosystem, often beyond the structural reforms. Our findings highlight BIP impacts to monitor over the long term and to consider in evaluations of future rebalancing efforts.
Jul 16, 2021
Journal Article
Evidence Map of Ductal Carcinoma in Situ Management Options
This is an evidence-map of ductal carcinoma in situ treatment options and impacts on patient-centered and clinical options.
May 26, 2021
Journal Article
A Qualitative Evaluation of Housing for Health in Los Angeles County
This study uses data from 14 qualitative interviews with senior leaders and nine focus groups with tenants and program staff to understand tenant experiences with permanent supportive housing programs, as they relate to care coordination.
Apr 13, 2021
Journal Article
Online Modified-Delphi: A Potential Method for Continuous Patient Engagement Across Stages of Clinical Practice Guideline Development
In this Perspective, we make the case for, and provide an approach to, using online Delphi approaches--particularly the online modified-Delphi--for engaging a panel of patients continuously throughout all stages of CPG development.
Mar 31, 2021
Journal Article
Individual, Interpersonal, and Health Care Factors Associated with Informal and Formal Advance Care Planning in a Nationally-Representative Sample of Midlife and Older Adults
This paper examines correlates of advance care planning among midlife and older adults in the U.S., with attention to informal planning (e.g., conversations) and formal planning (e.g., legal documentation) and factors at the individual, interpersonal, and health care levels.
Mar 31, 2021
Report
Long-Term Care Policy: Who Should Be at the Table?
The COVID-19 pandemic has underscored that long-term care residents, their families, and staff have limited representation when it comes to facility policies. Recognizing them as stakeholders with perspectives to include in decisionmaking could improve infection control practices and also address residents' health-related quality of life.
Feb 2, 2021

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RAND Health Care

Researcher Spotlight

Sarah Dalton

Policy Analyst

Sarah Dalton is a senior policy analyst at the RAND Corporation. Her interests center on measuring and improving health care quality in the United States. Previously, Dalton managed the Development and Maintenance of Post-Acute Care Cross-Setting Standardized Patient Assessment Data project, a…
Mahshid Abir

Senior Physician Policy Researcher

Mahshid Abir is a senior physician policy researcher at the RAND Corporation. Also a practicing emergency physician, Abir's research evaluates the continuum of acute care delivery, including pre-hospital, emergency, inpatient, and ambulatory care, with a focus on policy-related issues pertaining…

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